Little Mann, Big Laundry
Can you believe such a little guy can create so much laundry. Especially since he wears size four shirts and itty bitty shorts. No long sleeves because of his short arms. And only a few long pants which need to be rolled up to fit right. Add bedding, blankets, clothes, drool cloths and it adds up to one big basket of laundry.
A Day In Samuel’s Life
Like the ever-present laundry basket, Samuel needs to be attended to everyday. He wakes up full of joy, happily greeting me with smiles. His smile not only brightens the room, but lightens my heart. What a wonderful way to start the day.
After a quick change and giving him water through his g-tube, it is time for breakfast.
Then it’s time for a stroller ride outside. If it is too warm outside, the ride is quick. Samuel does not do well if he gets too hot. His forehead turns red and he starts to sweat. I frequently check the temperature before we go out. This time of year the weather is in the low 70’s in the morning. Perfect for stroller rides.
Soon, it is time for the school teacher, speech or occupational therapist to arrive. Before long the sounds of the song, Wheels On The Bus, fill my dining room. Or Samuel will have his hands in some art project.
After lunch we go for another stroller ride. Then, as Samuel plays with his books, iPad and chases cereal, I write this blog and post about my memoir, Miracle In My Living Room: The Story Of A Little Mann to social media.
Time for a bath. My little man likes to splash with his hands and kick his feet. I’m sure wash all his cute little rolls. Afterwards, it’s time for dinner and more play time.
By the end of the day, my Samuel will be sweetly dreaming. I take my sleeping beauty into his bedroom and place a probe on his foot to measure heart rate and oxygen level. Soft sounds of even breathing fill his room.
With the faint glow of a salt lamp coming from Samuel’s room, I snuggle in bed and reflect on the day. A day in the life of my son. Though he has a rare form of dwarfism, this quiet moment reminds me he is a full of joy, little boy who laughs, plays and loves attention. Our days are not measured by his disability, but by his personality. He is a gregarious, happy pre-teen whose smile will take your breath away and whose laugh will leave you wanting more. I am blessed to be his mother and to have such joy filling our home.
This is a day in the life of Samuel. What is your day like?
Written By: Evelyn Mann
Author, Miracle In My Living Room: The Story Of A Little Mann