First Comes Love, Then Comes Marriage, Then Comes A Little Baby

How We Met:

I met my husband when I was thirty-seven years old. We connected on a website called Christian Café. After two and a half years, we were married on a sunny Florida day. Within six months, my doctor’s office confirmed we were going to be a family of three.

So began our love story. With stories of happily ever after in our minds, we were filled with joy at our baby news.

Little did we know what was in store for us.

My Husband My Love
The Man I Love

Boy Or Girl?

After four months of wondering, we were excited to find out if our bundle of joy was a boy or a girl. I wanted to prepare by decorating the baby room and buying cute little clothes for the new addition to our family.

The gender reveal turned into something quite unexpected. Yes, we found out we were going to be parents of a boy, but we were unprepared for the revelation our child had a potential problem. His arms and legs weren’t growing. A series of doctor’s appointments followed to determine the cause of our son’s challenges.

A rocky road faced us. How would we hold up? One thing I knew; I was not alone. When I was 29 years old, I gave my life to Jesus. He gave me peace in my soul. Over the years, I’d seen Him come through time and time again. Those early trials prepared me for the battles which lay ahead.

Hope & Faith

Determining my son’s diagnosis became a guessing game. At one appointment, a healthy outcome was ruled out and replaced with several potentially life threatening conditions. Like a bad case of Russian Roulette, my son’s odds for life were not good.

Just as all hope seemed out of reach, I received a peace that passes understanding. Despite the predictions of a life limited to mere minutes for my son, my heart calmed. Believing for the best, we named our son, Samuel, which means God has heard.

As the months passed, I clung to hope. I heard of stories impossible situations which would uplift my faith. A child diagnosed in utero with Down’s Syndrome would be born with no complications. Or a child having a diagnosis and except for a few issues, the baby was fine. I also heard of children, despite having a challenging diagnosis living joyous, happy lives.

Where would my child fall on this spectrum? Hope told me he would have no complications. Doctors told me to expect a “not compatible with life” diagnosis. Faith told me to listen to everyone, but to watch what God would do.

A Little Baby is Born

By my thirtieth week of pregnancy, my doctor placed me on bed rest. On my thirty-first week, I ended up in the hospital leaking amniotic fluid. Expected to deliver in three days, a mini-miracle happened, and days turned into weeks. Delighted Samuel would have more time for his little lungs to develop, I prayed I would hear his cry at birth.

Little Baby
Newborn Samuel

I never gave up hope. Peace surrounded me like a blanket, not making sense in the midst of my circumstances. The doctors scheduled a C-section in my thirty-fifth week to avoid an infection. Just weeks after my fortieth birthday, my miracle was born. I did not hear his cry, but I saw his scrunched up face with his mouth open and tears streaming down his cheeks before he was whisked away to the intensive care unit.

My heart was whisked away with him. My heartbeat lived outside my body in my son, and my life would be forever changed. I became a mom to a miracle. I became a mom to a child with intense medical needs. But, I did become a mom. My “not compatible with life” son would live to breathe another day. And so we lived, day by day.

Sharing Hope

My heart is to offer others hope in the midst of unthinkable circumstances. To share a belief in miracles, proving nothing is impossible with God. And in the pages of my memoir, Miracle In My Living Room, hope abounds.

Little Baby
Snuggling My Little Man

To continue to follow our son’s journey with Thanatophoric Dysplasia Dwarfism, go to or subscribe on Special thanks to readers from Special Books By Special Kids for following our son.  ( If this post has touched you, please leave a comment. I read each one.

*Samuel has a rare and lethal form of dwarfism called Thanatophoric Dwarfism. He is one of only twelve survivors worldwide. He needed to be intubated at birth and lived on a ventilator for several years. He has exceeded expectations in many ways and is now eleven years old.

Written By: Evelyn Mann

Author: Miracle In My Living Room:The Story of a Little Mann

My Inspirational Miracle Mann

February 14, 2017

The Adventures of Miracle Mom

February 14, 2017

13 Thoughts on First Comes Love, Then Comes Marriage, Then Comes A Little Baby

  1. What a touching tribute to the meaning of mom. God bless you and your family.

    • Thank you, Maria. So appreciate your kind words. Thank you too for sharing with your readers about the miracle in my living room. Blessings, Evelyn

  2. Congrats on the new website design!

  3. Found you through Special Books By Special Kids page. I can’t wait to read your book. What an amazing story. I love seeing photos and videos of Samuel. His smile can make even my worst day so much better. Thank you for sharing him and your story with us! 🙂

    • Hi Rachel, Thanks for visiting from the Special Books by Special Kids page. I can’t believe Samuel’s interview has been viewed over 1 million times. Wow. Appreciate you being one of those special viewers. I hope you like the book too. Would love to hear your thoughts. Keep in touch.
      Smiles, Evelyn

  4. Wow, what an amazing inspiring story! May God bless you on this challenging journey and give you strength, peace and joy every day.

    • Hi Rolene, Thanks for your blessings. I’ll take it. We do take each day as it comes trusting God to guide and lead us. His mercies are new every morning. Thank you for your encouraging words.
      Smiles, Evelyn

  5. I too found you through Special Books for Special Kids. Your family is an amazing testimony of God’s comfort, peace, and grace through difficult situations. Thank you for listening to your heart when it came to not terminating your pregnancy. I love seeing Samuel’s smile and knowing how many lives he’s touched because of your courageous decision!

    • Hi Amber, I’m so glad you found us on SBSK. Chris is amazing. I was so tickled how Samuel took to him. Looking back over the years, I see how God gave us amazing grace and continues to do so. And seeing Samuel’s smiles has been one of my greatest joys. As I talked with another mom today, she said she could hardly remember the days before her son. I agree. Thank you for sharing your kind comments. I so appreciate your words of encouragement. Smiles, Evelyn

  6. Hi Evelyn
    Hats off to your unconditional love to your great baby. Your child is very lucky who find a great mother like you. Each child is special for a mother but you are a special mother with special love.

    • Thank you, Manju. We are all special mothers given what we need, when we need it to raise our precious children. I appreciate your kind comments. Smiles, Evelyn

  7. With LOL

  8. We are currently expecting baby #12. At his 20 week ultrasound it was discovered he had short, curved long bones and evidence of fractures. We had a few name ideas, but after learning he would have severe issues we immediately named him Hezekiah (God is My Strength) Samuel. By 24 weeks the genetic testing revealed his diagnosis of Thanatrophoric Dysplasia.

    Last night I was searching for stories of hope and somehow came across your Caring Bridge page which then led me to your blog. We have been praying for a miracle for our little boy (much like the Hezekiah of the Bible), but also praying for strength to endure whatever comes.

    Your/Samuel’s story gives me so much hope for our little boy! I also feel such a connection… Samuel was born the same day and year as my middle son, and of course there is the connection of the name Samuel. Additionally, our EDD is September 14, which I would guess is very close to Samuel’s expected due date.

    I would love to connect with you as we face making decisions for our son…

    Thank you for sharing your story. I am hoping to get your book to read at some point as well. I imagine the last 13 years have been quite the journey!


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