Evelyn Mann

Our house turned into a makeshift hospital room with nurses filling our days with 24-hour care. At age three, Samuel received a dream vacation from the Make-A-Wish foundation which exposed him to a world outside of home and doctor’s visits. Then, another miracle, Samuel sheds his ventilator opening new doors to travel culminating in whirlwind trip to Niagara Falls. Our now 11-year-old boy continues to be a Miracle In My Living Room.

In sharing our decade long journey, we hope to encourage other families with similar circumstances to face trials with faith and to believe miracles still happen.

When I was pregnant with Samuel and after his birth, I had no examples of hope. We were told of two survivors with Thanatophoric Dwarfism who lived in Japan. One passed at 3-years-old and another at 7-years-old. That is all the information we had to go on. No parents to call, no hope from the doctors, and no smiling children to point to. Little did I know then, my son would become a beacon of hope for future families.

In my memoir, Miracle In My Living Room, I share the impact my little man has had on these special families. Having no knowledge of survivors, many parents are devastated by this “not compatible with life" diagnosis. My desire in writing this book is to pass on hope where often none is found.

If you know someone facing an unthinkable circumstance who needs an example of hope and miracles in this midst of the storm, share Miracle In My Living Room.