Miracle in my Living Room
The Story of a Little Mann
In 2005, our son was given a “not compatible with life” dwarfism diagnosis in my twentieth week of pregnancy in Tampa, Florida. My husband and I chose to not terminate our bundle of joy and Samuel was born via c-section on August 2nd. Relying on our faith, we faced many tenuous weeks in the hospital which turned into months in a struggle for our son to survive Thanatophoric Dwarfism and wean off the hospital ventilator. Though our son’s dwarfism diagnosis means “death bringing” in Greek, God had other plans and our son came home at six months old.
One Child, One Life, One Miracle
Our house turned into a makeshift hospital room with nurses filling our days with 24-hour care. At age three, Samuel received a dream vacation from the Make-A-Wish foundation which exposed him to a world outside of home and doctor’s visits. Then, another miracle, Samuel sheds his ventilator opening new doors to travel culminating in whirlwind trip to Niagara Falls. Our now 11-year-old boy continues to be a Miracle In My Living Room.
In sharing our decade long journey, we hope to encourage other families with similar circumstances to face trials with faith and to believe miracles still happen.
When I was pregnant with Samuel and after his birth, I had no examples of hope. We were told of two survivors with Thanatophoric Dwarfism who lived in Japan. One passed at 3-years-old and another at 7-years-old. That is all the information we had to go on. No parents to call, no hope from the doctors, and no smiling children to point to. Little did I know then, my son would become a beacon of hope for future families.
In my memoir, Miracle In My Living Room, I share the impact my little man has had on these special families. Having no knowledge of survivors, many parents are devastated by this “not compatible with life" diagnosis. My desire in writing this book is to pass on hope where often none is found.
If you know someone facing an unthinkable circumstance who needs an example of hope and miracles in this midst of the storm, share Miracle In My Living Room.