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Miracle in my Living Room

The Story of a Little Mann

In 2005, our son was given a “not compatible with life” dwarfism diagnosis in my twentieth week of pregnancy in Tampa, Florida. My husband and I chose to not terminate our bundle of joy and Samuel was born via c-section on August 2nd. Relying on our faith, we faced many tenuous weeks in the hospital which turned into months in a struggle for our son to survive Thanatophoric Dwarfism and wean off the hospital ventilator. Though our son’s dwarfism diagnosis means “death bringing” in Greek, God had other plans and our son came home at six months old.

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One Child, One Life, One Miracle

Our house turned into a makeshift hospital room with nurses filling our days with 24 hour care. At age 3, Samuel received a dream vacation from the Make-A-Wish foundation which exposed him to a world outside of home and doctor’s visits. Then, another miracle, Samuel sheds his ventilator opening new doors to travel culminating in whirlwind trip to Niagara Falls. Our now 9 year old boy continues to be a Miracle In My Living Room.

In sharing our decade long journey, we hope to encourage other families with similar circumstances to face trials with faith and to believe miracles still happen.

Overview

When I was pregnant with Samuel and after his birth, I had no examples of hope. We were told of two survivors who had lived in Japan. One passed at 3 years old and another at 7 years old. That is all we knew. No parents to call, no hope from the doctors, and no smiling children to point to. Little did I know then, that my son would become that hope for future families.

In my memoir, Miracle In My Living Room, I share the impact my little man with Thanatophoric dwarfism has had on these special families. Having no knowledge of survivors, many parents are devastated by this not compatible with life diagnosis. My desire in writing this book is to pass on hope where often none is found.

To Offer or Withhold Medical Care?

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